Noor | Medical Emergency: 5 Month Old Baby Diagnosed With Rare Blood Disease

Thank you to all our donors, we have met our fundraising goal.

or donate via

Key Points

Muhammad Umar Wafiy is a 5 months old boy in Malaysia who was recently diagnosed with a condition called Hemolytic Uremic Syndrome (HUS).
HUS is a rare but serious disease that affects the kidneys and blood clotting functions of those infected.
He is the only second ever person reported to be diagnosed with this condition, the last one being in 2018.
Specialists recommended a special injection for Umar that will cost the family RM 14,800/month for every injection.
Donations to this campaign will help cover the cost for the medical expenses and the monthly injection that Umar needs.

🇲🇾 Perubatan Kecemasan: Bayi 5 Bulan Di-Diagnos Menghidap Penyakit Darah Jarang Berlaku

Muhammad Umar Wafiy adalah seorang bayi berumur 5 bulan yang baru sahaja di-diagnos dengan sejenis penyakit dipanggil Hemolytic Uremic Syndrome (HUS). HUS adalah sejenis penyakit jarang jumpa yang menjejaskan buah pinggang dan fungsi pembekuan darah pesakit.

Adik Umar hanya pesakit kedua yang di-diagnos dengan penyakit ini, kali terakhir penyakit ini di-diagnos adalah pada tahun 2018. Para pakar mencadangkan sejenis suntikan khas untuk Umar yang bakal membebankan keluarganya dengan kos sebanyak RM 14,800/sebulan bagi setiap suntikan.Sumbangan ke atas kempen ini akan bantu penyaraan kos bagi perbelanjaan perubatan dan suntikan bulanan yang diperlukan oleh Adik Umar.

Campaign Story

Muhammad Umar Wafiy is a 5 months old boy in Malaysia who was recently diagnosed with a condition called Hemolytic Uremic Syndrome (HUS) by the Pediatric Specialists in Pusat Perubatan Universiti Malaya (PPUM).

HUS is a rare but serious disease that affects the kidneys and blood clotting functions of those infected. Infection with HUS causes the destruction of red blood cells, which can then cause kidney failure. The disease occurs more commonly in children under 5 years of age than in other age groups. Symptoms of HUS include vomiting, bloody diarrhoea (loose stool/poop), stomach pain, fever, chills, and headache. As the infection progresses, Umar may experience fatigue, weakness, fainting, bruising, and paleness. Complications may occur leading to high blood pressure, seizures, blood-clotting problems, kidney disease, stroke, or even coma.

Muhammad Umar Wafiy was admitted to the Pediatric Intensive Care Unit (PICU) in PPUM to undergo treatment for his condition. He is the only second ever person reported to be diagnosed with this condition, the last one being in 2018.

For the treatment for HUS, medical experts are recommending Plasma Apheresis and an injection of Enculizumab (a medication). The specialists have recommended the injection for Umar. It is a monthly injection that will cost the family RM 14,800 per month for every injection. This is to make sure the blood is in good condition.

Unfortunately, the cost of the injection is an extremely heavy burden upon Umar’s family. Because of the immense rarity of the condition, the injection is not listed in the medication list under Farmasi Kementerian Kesihatan Malaysia. Umar’s family will have to pay and book the injection in advance in order for it to be delivered according to schedule. This monthly procedure is a necessity for Umar to have a chance to recover from this condition and to have a chance to live a normal life again, free of this rare blood disease.

Donations to this campaign will help cover the cost for the medical expenses and the monthly injection that Umar needs.

Let’s start with just MYR 25 and help provide relief to Umar and his family from this heavy medical burden.

The Messenger of Allah ﷺ said: “Whoever relieves a Muslim of a burden from the burdens of the world, Allah will relieve him of a burden from the burdens on the Day of Judgement. [Tirmidhi]

Campaign Updates

10 March 2022

Campaign Started

Campaign Partner

The Malaysian Islamic Economic Development Foundation (Yayasan Pembangunan Ekonomi Islam Malaysia -YaPEIM) was created in 1976 under the Trustees (Incorporation Act) 1952. YaPEIM is committed to assisting communities in the B40 categories with the implementation of various programmes under ‘Kluster Kebajikan, Keusahawanan dan Sosioekonomi’.

Medical Emergency: 5 Month Old Baby Diagnosed With Rare Blood Disease